Pharma® (vutrisiran) · Patient Ambassador Program

Real stories. Real strength. Real ambassadors.

Meet the 12 ambassadors of the Pharma program — patients living with hATTR amyloidosis with polyneuropathy who share their stories with your brand teams, field force, and the broader community.

Filter12 of 12

Lookbook

Across the country

Ambassadors

12 of 12 stories
Aimee N.
Albuquerque, NM

Aimee N.

Dx hATTR amyloidosis in 2023

"I tell my patients' parents: you know your kid. Now I tell myself: you know your body. Same thing."

Barry K.
Madison, WI

Barry K.

Dx hATTR amyloidosis in 2015

"The most important thing in my life was my son and that meant fighting for my health no matter the cost."

Bill H.
Atlanta, GA

Bill H.

Dx hATTR amyloidosis in 2018

"You only get one body. Trust what it's telling you, and don't let anyone talk you out of asking the next question."

Daniel E.
Salt Lake City, UT

Daniel E.

Dx hATTR amyloidosis in 2021

"I still run. Slower, smarter — but I still run. The trail is still there. So am I."

Frank P.
St. Louis, MO

Frank P.

Dx hATTR amyloidosis in 2016

"I climbed poles for forty years. The hardest thing I ever did was tell my doctor I was scared."

Margaret D.
Manchester, NH

Margaret D.

Dx hATTR amyloidosis in 2016

"A library is a place where people come to find themselves. So is a patient circle, it turns out."

Philip S.
Richmond, VA

Philip S.

Dx hATTR amyloidosis in 2019

"Every patient is a narrator. The illness wants to take the pen. We don't let it."

Richard W.
Charlotte, NC

Richard W.

Dx hATTR amyloidosis in 2020

"Every kid in my building knows: you don't get to skip the hard parts. You walk through them."

Sebastian I.
Austin, TX

Sebastian I.

Dx hATTR amyloidosis in 2022

"Knowing what was coming was a gift. It meant I got to start the next chapter on my own terms."

Shirley C.
Sacramento, CA

Shirley C.

Dx hATTR amyloidosis in 2014

"I taught children for thirty years. Now I'm teaching doctors how to listen."

Susan K.
Boston, MA

Susan K.

Dx hATTR amyloidosis in 2017

"Healthcare is a system. Patients are people. The bridge between them is the work of my life now."

Vera V.
Portland, OR

Vera V.

Dx hATTR amyloidosis in 2019

"I photograph the small things. The first pour of coffee. The light in the hallway. They're what I want to remember."

Upcoming engagements

View all →