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Bill
Hometown
Atlanta, GA
Diagnosed
hATTR amyloidosis in 2018
Started treatment
March 2019
Time to diagnosis
Eight years
Family history
Hereditary (Mother)

Patient Ambassador

Bill H.

"You only get one body. Trust what it's telling you, and don't let anyone talk you out of asking the next question."
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Bill spent four decades behind the wheel of an eighteen-wheeler, and he liked to say the road taught him most of what he knew about people. You read the weather. You read the truck. You read yourself. So when something inside him stopped reading right — when the fatigue stopped lifting and the appetite stopped coming back — he didn't dismiss it the way he might have at twenty-five. It took two appointments and a frank conversation with a primary care doctor he barely knew before anyone put a name to what was happening. Bill remembers the relief of having something to call it, and the strange quiet that came after. He is not a man who shows panic easily. What he did instead was call his daughter, and then his sister, and then he sat for a long time with the dog in the backyard and watched the light move. The treatment was harder than he wanted to admit. There were weeks when he couldn't drive, weeks when the small kitchen tasks felt like long highways. But Bill is a planner — he had logbooks, after all — and he turned that habit on his own care. He kept lists. He wrote down questions before each appointment. He learned, slowly, to ask his family for help without apologizing for needing it. He is back behind the wheel now, though only short routes, and only on his own terms. He says he watches the road differently. He notices more. And when somebody at the truck stop asks how he's doing, he tells them the truth, because he believes other men should hear it from someone who looks like them.

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