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Daniel
Hometown
Salt Lake City, UT
Diagnosed
hATTR amyloidosis in 2021
Started treatment
February 2022
Time to diagnosis
Three years
Family history
Hereditary (Mother, sister)

Patient Ambassador

Daniel E.

"I still run. Slower, smarter — but I still run. The trail is still there. So am I."
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Daniel started running in college and never really stopped. He ran through graduate school, through his first job, through the year his marriage ended and the year his father died. The trail behind his house, a five-mile loop through pine and mountain laurel, was the one place he could count on himself to think clearly. He was running it the morning he first noticed something was wrong. He ignored it for longer than he should have. Runners do, he says — there is always a reason your body feels off, always a workout to blame, always a next week when it will be better. By the time he saw a doctor, the conversation was more serious than he had prepared for. He sat in the parking lot afterward and watched a hawk circle over the trees and tried to understand what he had just heard. Treatment changed his pace, in every sense. He could not run for months. He learned to walk the trail instead, slowly, often with his sister or a friend. He learned that the trees were still there whether he was running or not. He learned, too, to ask for help — to let people drive him, cook for him, sit with him on the couch and not say anything for an hour at a time. He runs again now. Slower, smarter, with a watch he actually pays attention to. He has stopped racing. He says the trail is still there, and so is he, and that on most days that is enough. On the harder days, he reminds himself that showing up is its own kind of finish line.

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