Monday, June 8, 2026Hosted with New England Rare Disease Coalition

Rare Disease Day Boston

Boston Convention Center · Boston, MA · 4:48 AM UTC

Annual community gathering. Pharmaeda ambassadors host a story circle in the afternoon programming.

Agenda

“Healthcare is a system. Patients are people. The bridge between them is the work of my life now.”

“A library is a place where people come to find themselves. So is a patient circle, it turns out.”