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Thursday, July 9, 2026Hosted with Pharmaeda
Austin Patient Meet & Greet
The Driskill · Austin, TX · 4:48 AM UTC
Intimate evening event for newly diagnosed patients and their families in central Texas.
Agenda
- 6:00 PMReception
- 7:00 PMWelcome from Sebastian
- 8:00 PMOpen Q&A
Featured ambassadors

Bill H.
Atlanta, GA
“You only get one body. Trust what it's telling you, and don't let anyone talk you out of asking the next question.”
advocatenewly-diagnosed

Sebastian I.
Austin, TX
“Knowing what was coming was a gift. It meant I got to start the next chapter on my own terms.”
newly-diagnosedhereditary

Frank P.
St. Louis, MO
“I climbed poles for forty years. The hardest thing I ever did was tell my doctor I was scared.”
hereditarylong-term

Philip S.
Richmond, VA
“Every patient is a narrator. The illness wants to take the pen. We don't let it.”
advocatelong-term

Aimee N.
Albuquerque, NM
“I tell my patients' parents: you know your kid. Now I tell myself: you know your body. Same thing.”
newly-diagnosedhereditary